tag:blogger.com,1999:blog-29568815782273707192024-03-13T19:25:34.689-07:00The Groen Family Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.comBlogger121125tag:blogger.com,1999:blog-2956881578227370719.post-38145149406641566192014-06-19T10:53:00.001-07:002014-06-21T15:05:53.596-07:00Urology evaluation Yesterday mom and I took Brant to Children's to meet with Urology for an evaluation. Brant is not circumcised yet. They wouldn't do it in the NICU because his other medical issues were more pressing. They also wouldn't do it while he was on oxygen in fear of having to intubate again. When we got referred to Urology and I called to make the appointment I was told that they typically don't do voluntary circumcisions but given his circumstances they would at least do an evaluation and if they decided not to they could refer us elsewhere.<br />
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They decided they would go ahead with the surgery and because of his medical history they wanted him to be seen in the Pass Clinic by an anesthesiologist before surgery. The urologist we met with saw how far we had to drive so she got a hold of an anesthesiologist for us who agreed to squeeze us in later the same day. That was really nice of her but made it one unexpectedly LONG day. We had about an 2 hours to kill before we had to be seen in the Pass Clinic and Brant was SO tired. The anesthesiologist went over everything with us and we got the surgery scheduled for July 25. I can't wait to get this done, over with and behind us!Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-46803175410671783292014-06-19T10:43:00.000-07:002014-06-19T10:43:19.802-07:00Checkups with UW and Children'sMom and I took Brant to UW Medical Center for his latest development check-upon the 21st. It went really well. We first met with Development Pediatrics. The only thing they wanted us to work on is his speech. They told us that he should have a few words by now. I wasn't concerned by it though, he jabbers a lot so I'm sure it'll just come with time. They said to read to him more so we are doing that.<br />
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We next met with Audiology. They stuck Brant and I along with a medical student into a sound proof little room. She stuck me and Brant in front of mirror and on either side of us were speakers and then 2 blacked out boxes on each side. Inside the boxes were light up toys that made sound that were controlled by remote. The medical student had headphones on that the audiologist was giving her instructions through. She would get his attention in the center and when he looked whichever way the sound was coming from they would activate the toy in the box on that side. I always wondered how they checked hearing in little ones.<br />
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He passed with flying colors in the audiology department. After that we had an hour lunch/nap time break. Brant wouldn't go to sleep so we went up to the NICU for a visit. One of our friends sister has twins in the NICU right now and she was there that day so we got to visit with her for a while and also got to see a couple of Brants nurses and his physical therapist which was great. We learned that a couple of our favorite nurses he had aren't at UW anymore which was a little disappointing since we haven't seen them since we left.<br />
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Brant and I headed to Children's on the 29th. I was a little nervous about taking him down by myself... he doesn't do too well in the car. I think he gets bored and when he gets bored he gets crabby but he did great. We met with pulmonology and they did an evaluation and it went great! They graduated him from the clinic and won't need to see him unless we feel like there is an issue they should be aware of. She did say he is at high risk for asthma so we will need to watch that carefully.Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-11780192319356062322014-04-28T20:57:00.001-07:002014-04-28T20:57:10.453-07:00Sick kids suck! Last week Brant was REALLY sick. He had a really high fever all weekend and and wasn't sleeping. The only place he would sleep was if I was holding him in the recliner. Monday morning I brought him into the doctor and we spent 2.5 hours there. His doctor figured it was a viral thing so there really isn't anything she could give him. Just to be sure she wanted to get x-rays done to rule out pneumonia. We went to Mt. Baker imaging and had those done then back to her office to get the results. Those came back clean (well clean for him). She also tested for strep and that came back negative. Finally by Friday he was feeling better but that whole week was MISERABLE for all of us.Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-51367737239854950452014-04-28T20:51:00.000-07:002014-04-28T20:51:17.950-07:00Iowa Trip Back at the end of March I flew out to Iowa for a few days for the Waverly Draft horse sale and met up with Grandpa Pete, Grandma Joyce and Amber. I flew out Tuesday morning from Bellingham and arrived at the Waterloo airport about 9 p.m. Iowa time. I had such a good time. Wednesday morning we were up bright and early, dropped Joyce off at the sale and Pete, Amber and I headed an hour out of town to an amish farm to load horses and haul them to the sale. It was about 17 degrees and WINDY. Wednesday at the sale was just the horse preview. There really wasn't much for us to look at all. There weren't many horses to begin with and even fewer belgians. SO Amber and I decided to grab the keys to the truck and take off for the afternoon. We had such a good time. We went to Hazleton and they have the cutest little amish farms. We visited a bunch of their shops and just drove around checking it all out. We timed it perfectly too and saw all of the little kids going home from school on their little buggies. SOOOO stinkin cute. Didn't come home with any new horses but it was an experience and I want to go back so bad. Its definitely more laid back there, and open. When I landed in Chicago for my layover I wanted to hop back on the plane and go right back.<br />
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Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-7364794329628833232014-03-22T11:15:00.000-07:002014-03-22T11:15:05.027-07:00First HaircutBrant had his first haircut this past thursday. I held out as long as possible! Darren finally told me that if I didn't make an appointment he was going to buzz it off. So I called Jana that night and made an appointment! <div>
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before on Grandma's lap</div>
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not too sure about it </div>
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He did great! </div>
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And after!!! He looks like such a big boy now! </div>
Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-61063428135183362122014-03-22T11:07:00.002-07:002014-03-22T11:07:15.031-07:00Throwback to the boys' birthday! Finally found time this morning to upload all of my pictures off my camera and realized I never posted pictures from the boys' birthday party! So here they are... It was Seahawk themed since it was the same day as the super bowl <div>
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Had to test out his new four wheeler from Grams and Grandpa </div>
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Brant and Bode were twins that day </div>
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Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-92216670733565737162014-03-12T21:08:00.001-07:002014-03-12T21:08:57.137-07:00The Moment We've All Been Waiting For! AH I know its been a while since I posted, it seems like life is just flying by!!! I've been extremely busy. Darren was working in Sunnyside for 2 weeks, he came home last week Friday morning and headed back over on Monday for another week :( Its hard without him here that's for sure! All my single mama friends I give you props! It is not fun!<br />
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2 weeks ago we did Brant's 2 night oxygen sleep test. I was very nervous and up literally all night both nights checking on him. From what I could see he was doing just fine. It took forever to get the results back from Children's. That was a very frustrating process but I finally heard back from them on Friday.... AND....... HE IS DONE WITH OXYGEN!!!! (unless he gets sick)<br />
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13 Months later and we are done with medical equipment.<br />
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13 Months later and no attachments.<br />
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OH HAPPY DAY. He sleeps much better without it. He actually slept through the night 2 nights in a row, I didn't think I would ever know what a full nights sleep felt like again!<br />
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fun in the snow a couple weeks ago! </div>
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That's one way to use your dump truck! </div>
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Bath time hair! </div>
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<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-38904937693630290812014-02-12T16:39:00.001-08:002014-02-12T16:39:55.316-08:00Time to catch up Alright I have a lot of catching up to do on here! I haven't been posting because my computer charger stopped working and it took forever to get a new one. I tried on my kindle but I got too frustrated. SO here it goes....<br />
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The week of January 12 was CRAZY busy. I worked all day Monday, and Tuesday morning. After work on Tuesday I ran home, picked up Brant and headed into Bellingham to take him to his Synagis appointment. I HATE those appointments; its where they give Brant the synagis shot for RSV. He gets 2 in each leg and they are incredibly painful. He cries so hard and gets SO worked up and then usually sleeps the rest of the day. After his appointment we went home and I got to cleaning the house up.<br />
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Wednesday morning we were up and out of the house bright and early. I had a quick dentist appointment and then headed to bellingham for an annual check-up for me. After we got home I put Brant down for a nap and got to packing for Hawaii. Thursday morning I cleaned and finished packing and spent quality time with Brant before we left for the airport. Our flight left around 2:30 and we got to the hotel in Kapalua on Maui around 11 Hawaii time.<br />
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It was so nice to get away! I missed Brant a lot but I think he had a lot of fun with my mom and dad. He LOVES them. The first day we were there we took the bus into town to get groceries and figure out where everything was at then hung out by the pool until it was time to get ready for the Luau. That was a lot of fun, really good food and great show. For the most part we hung out at the beach by the hotel and at the pool. We did go zip lining one day. We had to check in by 7:30 and then headed up the mountain with our instructors- whose names were Trevor & Peter (we all got a good laugh about that- Trevor's roommates name is Peter). It was a blast.<br />
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We had a lot of fun but were definitely ready to come home. When we got on the plane to head home Darren and I looked at each other and both said we missed Brant and wanted to go home and see him.<br />
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<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-43098468779887927112014-02-12T16:39:00.000-08:002014-02-12T16:39:41.292-08:00Brant- 1 Year old OH my where oh where did the time go???<br />
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My baby is 1 year old....<br />
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I was pretty emotional in the time leading up to his birthday, and honestly I'm still emotional and times and it totally catches me off guard. We had a big super bowl/birthday party for Brant and Darren. It went good. Though half way through the party I started not feeling all that great. Once everyone left I crawled in bed and slept through the majority of the game. I woke up that night feeling pretty awful and had a really high fever. I tried going to work on Monday but they sent me home. And I'm glad because a day of rest seemed to be just what I needed!<br />
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Here are a bunch of pictures from Brant's 1 year pictures that we had done by Cassie Van Boven- she did an AWESOME job!<br />
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what a little model </div>
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one of my favorites! </div>
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he was not a fan of cake.... </div>
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<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-38003540531433035702014-01-05T12:56:00.002-08:002014-01-05T12:56:51.391-08:00Feeling accomplished! This weekend was busy for us but we got a lot accomplished on the house! A big thanks to Justin for helping us out!<br />
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Friday after I got off work I went to pick Brant up from Nicki's. I hung out there for a little while because Darren & Justin were going to go get dinner so there was no rush to get home. Then us girls decided to go out for Sushi. We went to Nami in Lynden so that I could take Brant with us (whenever we go we are generally the only ones in there). After I got home Brant was NOT tired. He was actually pretty wired so we took down the Christmas tree and got that all cleaned up. There's 1 thing off my to-do list. I usually would keep it up longer but I was getting so sick of getting after him about grabbing the lights and sticking them in his mouth.<br />
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Saturday morning Darren decided not to go snowmobiling even though it would've been an awesome day and get the garage done. We started around 9 cleaning it out and then around 10-10:30 we went out for breakfast and to get supplies. The garage was left unfinished and the previous owners had put so many nails into the walls that we had a lot of patching to do. It was like anytime they had some random thing to put somewhere they put a nail in the garage wall and hung it up. It's called a peg-board people!!! so frustrating. Darren & Justin pulled all the nails out, patched everything and then we all got to painting. It looks SO. MUCH. BETTER. Darren & I were up until 11:30 finishing painting and then taking everything back in and reorganizing. We still have some work to do. Darren ordered some lights from our electrician friend that he needs to go pick up and then hang in there. He also wants to make a work bench on one of the walls and make it so that his tool box can slide under it. And this summer I think I'm going to try to stain all the storage shelves. But for now it is looking great!<br />
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We have a lot of projects that need to get done around the house. The biggest one next is finishing the patio once the ground thaws. We still have a big hole in the yard... That's going to be quite the project for Darren and I'm so hoping he will get it done before I hardly ever see him for a few months when it gets busy.<br />
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MY projects that I need to do yet is first paint our bedroom... the only thing holding me back is deciding on a color. Usually I know exactly what I want to do but that room I'm being very indecisive. After I tackle that I'm going to move to the laundry room. I think I've decided what I'm going to do in there. THEN I'm moving on to redoing the tile thats on the fireplace. I HATE it. Its white tile with pink in it... I would like to do some pretty small glass tiles and then slate tiles.<br />
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Darren went to Church today while I hung out with Brant. We are off to his cousins birthday party this afternoon then we will hang out at mom and dad's for a while. This week begins the crazy busy schedule before Darren & I leave for Hawaii. We are leaving Brant with my mom and dad. I'm so looking forward to getting away but nervous about being so far away from him. I know he will be great hands and nothing will happen but I've never been that far away from him or left him overnight since he was in the NICU!Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-73209178135093966412014-01-02T14:44:00.000-08:002014-01-02T14:45:44.895-08:002013 Wrap-upWell 2013... I don't even know what to say. Good ridden? So long? Thank you? Nothing seems quite right. 2013 was the most stressful year on me thus far; the most worrisome, yet brought the greatest joy of all.<br />
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In ways I'm sad that its already 2014. That means my baby is going to be a year old in a few short weeks. AH still hard to say that! He can't be a year old already! Stop the clock!!!! But I'm also glad to put the past year behind us a move forward.<br />
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I usually don't do resolutions but I am this year, and this year I want to make sure I stop and enjoy the moment. I don't want to be constantly looking forward to what the next day has to bring or constantly thinking about what happened the day before. I want to be thankful for the day I have and enjoy them with Brant and Darren because they'll be gone so fast.<br />
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came home from Church to this. so cute </div>
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checking out the snow with dad</div>
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all bundled up </div>
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oh so close </div>
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he loves his snuggles </div>
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not all that impressed with the elf hat from Briana </div>
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playing with his new tractor from daddy! </div>
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Christmas eve with Uncle Nathan and Dad </div>
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Merry Christmas!</div>
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Leavenworth with Grandma </div>
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playing with his and dads new toy in Winthrop </div>
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such a cute face, if I don't say so myself! </div>
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<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-63575579284556629302013-12-30T12:04:00.000-08:002013-12-30T12:04:09.115-08:00I need a vacation... Yep thats what I said to Darren literally 20 minutes after we walked in the door after being on vacation...<br />
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Christmas was great this year. We spent Christmas eve with the Groen side of the family. Brant got spoiled and was one TIRED boy. Christmas morning Brant opened his presents from Darren and I and then we opened our stockings. After we cleaned up and got ready we headed to my parents house for breakfast and to open presents with them. Later that afternoon the Lindquist side of the family came over to my mom and dad's. Brant did great. After that we headed to Darren's Grandma's to spend the rest of the evening with his mom's side of the family. By the time we got home Brant was passed out and barely moved when I moved him from the car seat to his crib.<br />
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I spent the rest of Christmas night packing and loading the car. We headed out about 9:30 or so to go to Winthrop with my parents and Cody. But first we had to stop at True Value. Darren said all their Christmas lights were going to be 75% off. We didn't decorate the outside of the house this year. Too much going on and we would've had to buy a ton of lights so we just decided next year. Well Darren went into True Value while I stayed in the car with Brant and he came back with I don't know how many boxes of lights. Our house is going to be looking good next year!<br />
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Brant did great on the ride over and while we were there. My mom and I took turns going snowmobiling and staying back with Brant. There wasn't much snow so we came back yesterday (Sunday). Darren got sick while we were over there. Bad congestion and his ears were plugged and ringing.<br />
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On the drive back Brant was really fussy, we were going to stop in Leavenworth quick so I could change his diaper and give him a bottle but we didn't make it that far. He was really crabby so we pulled over at a gas station and I changed him in the car and gave him to my mom and dad in the other truck so they could feed him while I went in and got some Dramamine. I was feeling pretty car sick. He was fussy for a little bit after we left then fell asleep. He woke up just after we got over the pass and from then on to home he cried, and screamed, and cried some more. That ride was AWFUL.<br />
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When we got home he was a little bit happier but anytime I touched him, picked him up or did anything with him he cried. He only wanted Darren. And of course Darren was feeling pretty awful so he was crabby too. I was trying to put everything away, keep a crabby child occupied and try to make Darren feel better at the same time. Not a fun night. Brant finally went to bed around 8 and Darren and I did the same not long after him. Then at 10 it all started........... Darren was miserable. Brant woke up so congested, coughing and screaming and the rest of the night was up pretty much every hour waking up and I had to suction out his nose and calm him back down. The only way I could get him to go back to sleep was to rock him. Let's just say I'm EXHAUSTED today and coffee is my best friend!<br />
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Today Brant is feeling MUCH better. Not near as congested as last night, still somewhat but not bad. He is going going going and scooting his way all over the house and into everything. I'm trying to get laundry done and keep my eyes open plus trying to keep up with him. Later tonight I'll try and post pictures from Christmas and our trip.Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-58686255965620173982013-12-12T15:14:00.003-08:002013-12-12T15:14:45.509-08:00Tis the Season! <div class="separator" style="clear: both; text-align: center;">
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Merry Christmas!! </div>
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Visiting dad & uncle Trevor at work </div>
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loves his footsies </div>
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My little snow bear </div>
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I had to move all the wrapped presents up because he kept opening them! </div>
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guess what I'm doing Saturday! </div>
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<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-31386944653383373532013-12-08T13:45:00.002-08:002013-12-08T13:45:30.262-08:00exhausted I'm a pooped! Brant is still sick with a cold. It's not too bad, just a runny nose at this point. Me on the other hand not so much. I'm completely congested, really bad sore throat, and pounding headache. All I want to do is sleep but I just can't let myself. Darren got up with Brant this morning at 5:45 so I could get some more sleep. Brant has been going to bed later and later and getting up earlier and earlier lately, though he isn't getting up at night near as often as he used to. Darren and Brant left a little while ago and went over to Darren's parents for the afternoon so I could try and get some sleep. But I can't fall asleep. The house is a DISASTER and that is all I see when I look around. Anyone want to come clean it tomorrow?? :)<br />
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Even though Brant is sick he is still so active and keeping us on our toes. He is army crawling, though not far but if he sees a toy he wants, he is going to get it! He has also discovered the dvd player and what buttons to hit to make it light up; I'm quite thankful that he hasn't found the open button... He is starting to get up on his knees more and more. I think around Christmas he will be crawling.<br />
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<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-43716974782630158092013-12-05T17:23:00.000-08:002013-12-05T17:24:11.362-08:00Seriously?!Brant had another doctor appointment this morning. It was his 9 month check-up even though he's 10 months now; they couldn't get us in any earlier. She is super impressed with him! He's on the growth charts for both height and weight; weighing in at 16lbs 8oz and 28 inches long. She did say when she listened to his lungs that he sounded a little wheezy and told me to keep a careful eye on it. If it does turn into a cold he needs to be back on oxygen throughout the day until he's over it. I was afraid of that because I came down with a runny nose the other day.<br />
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After his doctor appointment we went and grabbed some lunch for Darren & I and headed to the shop to have lunch together. He loves his daddy. Each morning they make coffee and eat breakfast together (but only after a half hour of snuggle/play time in our bed). After lunch we headed home and played for a while then Brant went down for a nap. I cleaned the house and threw some stuff together in the crockpot for dinner. The Noreco Respiratory Therapist stopped by to bring us his new monitor. We were having issues with the old one holding the settings and the probes reading on his foot. He woke up while I was meeting with her and learning how to use the new monitor. When I went in and got him he was coughing and sounded really congested.... great..... I figured while she was here we would hook him up to the monitor to check his SATS. Yup they were low. So back on oxygen he is! BOOO :( not what I was wanting. I was wanting to try to take him off at night early next week but now we have to let this cold run its course and hope he gets over it FAST. </div>
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It is so frustrating. I know he got this one from me so I feel really bad now. A little frustrated too. I've been trying SO hard not to get sick. I got a flu shot, been taking airborne everyday, washing/sanitizing my hands like CRAZY, bleaching/lysoling the house every night and I still get sick. But at least I can say I did everything I could and there is nothing I can do about it. If anyone has any tips to get a baby over a cold fast let me know! I'll be moving the humidifier from our room and into his room tonight and go get another one tomorrow to have in the house.<br />
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Maybe I should be put into isolation right along with him! </div>
Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-78043989828851866042013-12-01T19:49:00.000-08:002013-12-01T19:49:03.374-08:00Test results, odds & ends Happy Thanksgiving a few days late to everyone! We got Brants ECHO test results back Wednesday night and I'm finally finding a moment to fill everyone in. They came back totally normal. The pulmonologist said they have zero concern for pulmonary hypertension. So awesome news with that!<br />
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We went to Darren's grandmas for thanksgiving. We had a good time; Brant would not go to sleep. He was SO tired by the time we got home. Last night Darren & I had our first Christmas party to kick the holiday season off which was a lot of fun. My mom and dad came over and watched Brant for us. He was SO crabby and upset when they got there but said he was super happy for them... of course.<br />
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Today we had thanksgiving with the Groen side of the family then Darren dropped me and Brant our house and headed to my mom & dad's to work on his snowmobile. Brant is trying SO hard to crawl tonight. He has army crawled half a foot and keeps rolling everywhere and wiggling to get himself where he wants to go. I think it'll be soon and he will be crawling. Then we are in BIG trouble!<br />
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I got our tree put up the other day and finished decorating this morning before church. Darren was showing Brant the tree and immediately reached to grab an ornament. Not only is he interested in everything. He is a persistent little stinker! If he wants it he is going to get it!<br />
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<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-28104206931086041522013-11-21T21:10:00.001-08:002013-11-21T21:10:09.828-08:00LONG day<div class="separator" style="clear: both; text-align: center;">
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Brant right after his ECHO</div>
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Today was long... I'm exhausted, Brant is exhausted but it was a good day. We started our day leaving the house at 5:45 this morning with my mom & dad and headed to Seattle Children's. We got stuck in traffic around Mountlake Terrace then I had to go to the bathroom SO bad. We were already running a little late but there was no way I was going to make it so we pulled off somewhere and stopped at the gas station. Somehow we still made it to Children's on time. We checked in at 8:50 on the Cardiology floor for his ECHO. We still don't have the results back yet and probably won't get them until Monday. The actual ECHO went really well. When she told us it could take an hour and a half we all got pretty nervous... yeah trying to keep Brant still for an and half, NOT going to happen. But she put a movie for him and she had me lay on the bed with him. I had to hold his hands because he kept grabbing the thing out of her hand. It didn't take too long though and he did really well.<br />
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After that we had some time to kill before his pulmonary appointment so we headed to one of the Starbucks that they have there. Once we got checked in at the pulmonary clinic and got called back he started to get really sleepy and was REALLY mad when I had to strip him naked to get his height & weight. He weighed 16.4 lbs and is 27 inches long AND is on the growth charts for his chronological age which is a pretty big deal! The appointment went really well. She wants to get him off oxygen asap rather than waiting until Spring. She thinks he doesn't need it and it won't be long until he's crawling and its going to be a big mess with the tubes. So we will start weaning him off during naps and then call when we are ready to retry the 2 night sleep test. If that goes well he will be off oxygen unless he gets sick! We then were sent down to their flu shot room so he could get his second dose and so I could get a flu shot. Poor guy, he was passed out when they gave him the shot and he was NOT happy when he woke up to that.<br />
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After his appointments we headed over to UW to visit some friends who are there on bedrest... it brought back some emotions thats for sure! Prayers for both families would be much appreciated! They both have a long road ahead of them but they are for sure in the best place possible.<br />
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It was really weird to walk past my old room and see the hall that I walked down bawling my eyes out headed to the OR. It was the first time for my dad to be back there since we brought Brant home and as we were walking in the front doors he said "Gosh its like we never left!". It was funny because I said the exact same thing the first time I came back. Everything you go through there is worth it though. I could not imagine life without Brant and I often think back and wonder what did I do with my time before I had him?? I'm seeing more and more too how much he has Darren wrapped around his finger. Every morning Brant comes and snuggles in bed for a little bit with us and the other night Darren actually kept asking me if he could sleep with us tonight. It's pretty cute to see them play together. If Darren is home, where ever he is, Brant is.Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-1955388811922937032013-11-19T20:45:00.001-08:002013-11-19T20:45:52.474-08:00BUSY week! We've got quite the busy week! I worked yesterday, worked a couple hours this morning, then took Brant to the Walgreens Infusion place in Bellingham and he got his first Synagis shots. Then Darren & I ran a few errands in Bellingham, each taking turns staying in the car with Brant. Tomorrow we have the Noreco guy coming and delivering more oxygen stuff plus we have to try to get the right pulse-ox probe that will fit on his foot (he has outgrew the ones we have). And that can be a process because they carry so many, we have to find one that will fit his foot AND have the right adapter to go to his monitor.<br />
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Thursday me, mom and dad are taking Brant to his Seattle Children's appointment with his pulmonolgist and he will be getting an ECHO just to check his heart and make sure everything is normal. We are doing it just for peace of mind because of the issues he had last month when we tried to wean him off oxygen during the night. We think that when we tried doing that he was coming down with a virus and that is why he was having de-sats; not because of pulmonary hypertension (which is what we will be looking for in the ECHO). After that we will be making a stop at UW to visit a couple mom to be's that are on bed rest there. Then back home and back to work on Friday! Hoping for a very quiet weekend!<br />
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Back to today and his appointment for his first round Synagis! Synagis is a prescription medication that is given via shots in the legs. It contains virus-fighting antibodies that will help Brant if he were to get RSV (Respiratory Syncytial Virus). His weight today was 16 pounds, based on that weight he gets 2 shots, 1 in each leg and will get them every 4 weeks through March or April depending on how long the season lasts. They are very stingy on who they give the Synagis to because it is a very expensive drug- a LOT of paperwork goes along with getting it. The lady who gave him the shots said he was the first in this area to get it so we are very thankful for that!Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-52929132743922704272013-10-31T16:32:00.000-07:002013-10-31T16:32:24.349-07:00My little cow<div class="separator" style="clear: both; text-align: center;">
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Happy Halloween! And yes I had to get a pumpkin as big as Brant </div>
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He was not too impressed with me</div>
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We visited Grams, Grandma Nicki, and Uncle Brent this morning to show off his cow costume. I may be biased but I think he made the cutest cow ever. Brant is officially in his own room. The first night was hard on me, he slept great, but it was weird not having him within arms length of me all night. But I did sleep WAY better without him there and he really likes his room. </div>
<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-51124332564599242932013-10-22T20:26:00.004-07:002013-10-22T20:30:19.800-07:00All time favorites <div class="separator" style="clear: both; text-align: center;">
These are two of my favorite pictures! Both taken by Amber Weber </div>
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Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-31150107117086012802013-10-22T20:18:00.001-07:002013-10-22T20:18:16.088-07:00Everyday pictures <div class="separator" style="clear: both; text-align: center;">
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oh you know just riding in the tractor with daddy </div>
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he looooves his bath time or "spa night" as we call it </div>
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So this was his "tummy time toy" the physical therapist at his UW development check-up said to encourage tummy time by giving him a special toy that he ONLY got when he was on his tummy- TOTALLY worked, now he's always on his tummy</div>
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crabbing out at Cherry Point one Sunday</div>
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he loves his footsies </div>
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woke up to this the other morning... notice the oxygen off his face </div>
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talking to his toys </div>
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Sweet potatoes are by far his favorite </div>
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playing xbox with dad </div>
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such a cutie </div>
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game day! </div>
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trip to the pumpkin patch </div>
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waiting for Darren to get back to the load stand so we could hop in and go for ride </div>
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He looooved riding daddy </div>
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teaching him early! </div>
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watching veggie tales</div>
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playing in the Children's clinic waiting room </div>
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At the Children's Clinic in Everett- he loved the paper on the table- he kept ripping pieces off and crunching it. </div>
<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-51000471304402900332013-10-22T19:46:00.002-07:002013-10-22T19:46:47.991-07:00Brants 6 month pics & family pics <div class="separator" style="clear: both; text-align: center;">
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yes... that is my husband.... what a DORK! </div>
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yeager had to get in there </div>
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with great grandma joyce </div>
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love my little munchkin! </div>
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photo credit: Amber Weber </div>
<br />Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-8552065475675133992013-10-21T22:37:00.000-07:002013-10-21T22:37:35.601-07:00Children's Clinic Appointment Took Brant to the Children's Clinic in the Pavilion for Women & Children at Providence in Everett today. The appointment went pretty good- we believe that he has a virus that has caused his de-sats and lower than usual numbers. There is nothing they can do for him but let it run its course. We will be leaving him on oxygen until he gets over the virus and then will re-start weaning him off throughout the day and in a month or two re-visit the 2 night oximetry test.<br />
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With that being said the pulmonologist did say that due to the time of year and flu season, if we were to get him off oxygen in the next month or two we should expect to have to put him back on at some point because of any illness that he may get. She also said that if he keeps getting little viruses like this or can't seem to kick this in the adequate amount of time they may want to keep him on oxygen until Spring and when we are out of flu season.<br />
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We will go down to Seattle to visit his regular pulmonologist November 21 for a check-up. The original plan was to have an ECHO done and a few other tests but those have been cancelled due to him not being off oxygen. One worry they were thinking about with him is possible Pulmonary Hypertension and that being the reason for the de-sats but after today she doesn't think that is it. Plus she said due to the ECHO he previously had coming back totally normal, its not common for a child to develop Pulmonary Hypertension if they had no signs of it previously. She said she could schedule one if we wanted to for peace of mind but was clear that she did not think that was going on.<br />
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I really hope that we don't have to keep him on oxygen until spring. He gets so sick of the tubes in his nose and pulls them out already. He's only going to get more active and will probably be crawling in the next couple months so that is going to be really hard. But I just need to keep saying like I've said throughout this whole journey, You gotta do what you gotta do, we can handle it.Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-47182044319238796882013-10-18T19:50:00.000-07:002013-10-18T19:50:23.156-07:00**Quick update on pookers**Pookers (as we like to call him) isn't doing all that great. You can tell he's just not himself. His pulmonologist didn't know what to say with how he's been the last few days so she is having a fellow Children's doctor in the Everett clinic see him on Monday. So Monday my mom and I will be heading down to the Children's clinic in Everett either at or near Providence so they can take a look and possibly run a few tests... will post as soon as we know something. Maybe tomorrow I'll find a minute to upload and go through all my pictures- I'm really behind in that department!Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com0tag:blogger.com,1999:blog-2956881578227370719.post-33518906286858413012013-10-16T14:26:00.000-07:002013-10-16T14:26:45.780-07:00Update... feeling a little defeated One of these days I'll get around to posting a ton of pictures, but they are all still on my camera. So for now I will just let you know what's been going on with Brant.<br />
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Monday night (Oct. 14) we attempted to do his 2 night oximetry test. This is where he would sleep off of oxygen for 2 nights and his monitor would save the information & send it to his doctor down at children's and we would get a yes or no answer to getting rid of the oxygen completely. Well it lasted all of 20 minutes. His sats were not good. When I finally got the monitor on in a good spot he was at 94 (they don't want him below 92) and then slowly but surely it dropped down to 89 and he wouldn't come back up from that so I put him on oxygen and called the on-call pulmonary doctor and she said to put him on oxygen for the night and call in the morning to talk to his regular doctor. We did that and she said to leave him on oxygen for another month at night and we'll try the oximetry test again then. Fine. Okay. It's just at night, we can handle that. But a little sad because I was fully expecting to be done with this this week because of how well he has been doing...<br />
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And then today. I decided to hook him up to the monitor when he took his afternoon nap at about 1:30. It was a little low and then it got lower... and then it dropped. He came back up right away but I put him on oxygen. I'm really nervous now. I didn't have him on the monitor too much when we were weaning him from eating and nap time because it was SO hard to keep it on and have it not go off all the time because it couldn't read anything. He was always in the range for his sats never dropping below 94. I'm hoping that maybe he is just getting a cold and thats what is causing the low sat. levels. But in the back of my mind I'm thinking crap, was he sating low this whole time at nap time??<br />
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I'm going to attempt to keep him on the monitor the rest of today and see how it goes.<br />
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So anyway it'll be at least another month on oxygen. Yesterday marked him being home for 6 months! It's a little sad to see that too because the NICU staff all thought he would need oxygen for maybe another month, if that, and here were are six months later still dealing with it.<br />
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We go down to Children's November 21 next. They cancelled his ECHO because he isn't off oxygen yet. Though I wish they would still do it to see if anything is going on but they want to wait...Anonymoushttp://www.blogger.com/profile/16807651342762090229noreply@blogger.com1