BUSY week!

We've got quite the busy week! I worked yesterday, worked a couple hours this morning, then took Brant to the Walgreens Infusion place in Bellingham and he got his first Synagis shots. Then Darren & I ran a few errands in Bellingham, each taking turns staying in the car with Brant. Tomorrow we have the Noreco guy coming and delivering more oxygen stuff plus we have to try to get the right pulse-ox probe that will fit on his foot (he has outgrew the ones we have). And that can be a process because they carry so many, we have to find one that will fit his foot AND have the right adapter to go to his monitor.

Thursday me, mom and dad are taking Brant to his Seattle Children's appointment with his pulmonolgist and he will be getting an ECHO just to check his heart and make sure everything is normal. We are doing it just for peace of mind because of the issues he had last month when we tried to wean him off oxygen during the night. We think that when we tried doing that he was coming down with a virus and that is why he was having de-sats; not because of pulmonary hypertension (which is what we will be looking for in the ECHO). After that we will be making a stop at UW to visit a couple mom to be's that are on bed rest there. Then back home and back to work on Friday! Hoping for a very quiet weekend!

Back to today and his appointment for his first round Synagis! Synagis is a prescription medication that is given via shots in the legs. It contains virus-fighting antibodies that will help Brant if he were to get RSV (Respiratory Syncytial Virus). His weight today was 16 pounds, based on that weight he gets 2 shots, 1 in each leg and will get them every 4 weeks through March or April depending on how long the season lasts. They are very stingy on who they give the Synagis to because it is a very expensive drug- a LOT of paperwork goes along with getting it. The lady who gave him the shots said he was the first in this area to get it so we are very thankful for that!