Ups & Downs

Relaxing at Home 

Well we have been getting into a routine. It's made a big difference when it's just me and Brant during the day and we can just do our thing. At night I'm always worrying about him making too much noise for Darren to sleep or if I put him in the mamaroo to sleep I am afraid he will wiggle his way out of it with the way he's been wiggling lately. He sleeps better in it usually but it makes me sleep better when he's in his bassinet. We've had good nights and then nights like last night where he is up all night. It made a huge difference when Darren moved him over by him and rocked his bassinet all night.

We went to the Children's Bellevue Clinic today to meet with his pulmonary doctor. She will be deciding when to do his oxygen weaning. The appointment went great- he weighed 7 pounds 6 ounces and did awesome on his room air test. We discussed a tentative plan to take him off his oxygen for 10-15 minutes twice a day when he was awake. We were told it must be on when he's sleeping and eating. She also wants us to see their nutritionist at our next appointment and she is mainly in the Seattle Children's clinic so that's where we will be going from now on. However they do some blood tests before doing any changes so she said she could call us with the results before we start taking him off of oxygen. So we walked over to the lab- he got poked and cried and cried, then passed out. About a half hour after we got home I got a call from the nurse with the test results... SO disappointing! They didn't come back like they thought they would. His levels were too elevated to do any weaning so they will be reevaluated at his next appointment...which isn't for another 2 months. That's the earliest his doctor and nutritionist have openings on the same day. They want to see him before that so she was going to try to shuffle some kids around and see what she could do to get us in earlier. We should know and have a better idea by the end of the week.

I was so excited during his appointment. He ROCKED his room-air test. Didn't go below 96 (they like it to be 93 or higher, lowest 89). I thought we were headed towards weaning off oxygen, which I want off SO bad but no... not for a while longer yet. They said they were slow with it, but I REALLY hope we can get in before we hit the 2 months mark!